Carole James is approaching Parkinsonѻýs with a similar attitude thatѻýs gotten her through many difficult situations in life.
ѻýYou can take charge of it and work hard at what youѻýre able to do, not what you canѻýt do anymore,ѻý James said.
James, whose accomplishments include being the first woman to serve as Leader of the Official Opposition and the first woman of Métis descent elected to the Legislative Assembly (in 2005), was diagnosed with Parkinsonѻýs in 2020, bringing aspects of her political career to a close. But since going public with her diagnosis, sheѻýs been kept busy, including becoming an advocate for Parkinsonѻýs disease.
Early on, she made the decision to talk about her diagnosis in a public way to combat the shame and isolation that some people with Parkinsonѻýs experience. Sheѻýs become actively involved on the Parkinson Wellness Projects Board, which she describes as ѻýextraordinary.ѻý Simultaneously, she is taking four exercise classes, including boxing, which is good for managing the symptoms.
The best part for her is the opportunity to meet others with Parkinsonѻýs who can share experiences and humour. And sheѻýs also learning a new pace of life.
ѻýBeing proactive and learning how to live well with Parkinsonѻýs as long as you can is critical because itѻýs certainly not a diagnosis that anybody would want,ѻý James said. ѻýIѻým learning to be more patient with myself ѻý Iѻým used to going 100 miles an hour, so having to pull back on that is tough.ѻý
Despite all these changes, itѻýs no surprise that James continues to lean into the values sheѻýs held dearly throughout her career: family and making a difference through civic action.
James recently took her granddaughter on a fun girlѻýs trip to Paris for her graduation. She also serves on the Royal BC Museum Board, sits on crown corporation InBC Investment, and teaches not-for-profits how to pitch their proposal to government through United Wayѻýs Public Policy Institute, and more.
Looking back, she was propelled into this lifestyle almost effortlessly, born into a family where activism and community engagement were ingrained into daily life.
ѻý[In our house], the family was the broader community,ѻý James said. ѻýI was never lectured and told you had to get involved in your community, but you didnѻýt fit in our family if you didnѻýt get involved.ѻý
During the Vietnam War years, Jamesѻý single mother was active in the peace movement and a special education teacher. They lived at Jamesѻý grandparentsѻý house, along with her sister, for most of her childhood. Her grandparents were also foster parents, who always had at least four other kids in the house.
It propelled James to later be a foster parent herself, mainly with adults with developmental disabilities, for almost 20 years.
ѻýItѻýs an incredible experience. And those families became our families,ѻý James said.

ѻýStay true to your valuesѻý
James never set out to get involved in politics; it just happened. After becoming president of the Parents Association, a pivotal moment came when friends encouraged her to run for the school board. James, admittedly, at first said, ѻýNot in your life, Iѻým not a politician.ѻý But friends and people with common values offering support eventually convinced her. The rest, as they say, was history.
Perhaps no one was as surprised as her when she ended up running for NDP leadership in 2005 and rebuilding the party from three seats to 33 seats. The party didnѻýt win, but it felt like a huge win in a different kind of way, James recalls.
ѻýIt was such an extraordinary thing to see the party grow. And thatѻýs really part of why I ran,ѻý James said.
Back in 2003, James had admittedly ѻýrun away from politicsѻý for a while to see whether it was really something she wanted to do. She worked in child welfare for an Indigenous organization until she started getting asked to come back to politics and run for leader.
ѻýI was having a very hard time making a decision about the work because I loved it so much. But I think in the end, I didnѻýt know Iѻýd win ѻý But I knew Iѻýd regret it if I hadnѻýt taken a chance because it was a chance to rebuild the party,ѻý said James. ѻýWhen times are challenging, thatѻýs when you really need people to step up.ѻý
Despite the big wins that can come in politics, there can also be equally big lows. Notably, in 2010, James faced a leadership challenge that resulted in her subsequent resignation.
ѻýI tell people Iѻýve seen the good, the bad, and the ugly in politics,ѻý James stated. ѻýAnd Iѻýve thought a lot about how people get through those kinds of difficulties and challenges. And I think one is to stay true to your values ѻý. And I donѻýt hang on to things. Thatѻýs one of the biggest skills that Iѻýve learned. And why I am able to do that, I donѻýt know. Being raised in a family that faced lots of challenges, perhaps.ѻý
Despite that challenging time, James says she ran to rebuild the party and move things ahead for those who were struggling and thatѻýs what she continued to focus on.
Sheѻýs particularly proud of moments that resonated with her familyѻýs values, like when the NDP waived tuition fees for children in care who decided to pursue post-secondary education.
ѻýKids in care donѻýt have families in many cases ѻý The system is their family. And to think of those kids going out, trying to make it and the kinds of affordability challenges that all of us face right now is so challenging. And so to be able to know that youѻýve opened a door ѻý thatѻýs such a gift to have been involved in that decision.ѻý

James reflects on ѻýretirementѻý
Now in ѻýretirementѻý (James thinks we need a new word for it), her resilience continues while she stays engaged in organizations that matter to her while also practicing self-care. In moments for herself, she loves spending time with her husband, children and grandchildren, walking along Dallas Road and something that she thinks might surprise some people: baking.
ѻýI joke in politics, your job is endless; it never stops. With baking, you can create something and itѻýs done. You have a recipe. And in most cases people are happy with it,ѻý she said with a laugh.
She expresses that the retirement years can be a perfect time to get involved in politics or causes that matter to someone.
ѻýItѻýs a perfect time to reach out to those groups and organizations and start small,ѻý James said.
And her words of wisdom?: ѻýYou will always get back more than you give.ѻý
Sitting in her James Bay home, which once belonged to her mother, and is close to the oceanside that she loves, James also expresses gratitude.
ѻýI feel incredibly fortunate, but Iѻýve just ѻý Iѻýve followed paths that have appeared in front of me. And, you know, that means taking a deep breath lots of times where you donѻýt think you can do it. But taking those opportunities is a gift.ѻý